** NEW WEBSITE COMING SOON ** ( please keep me up to date)
Focused on the mobilization and transfer of knowledge, the Observatoire québécois de la proche aidance (the Observatory) seeks to inspire and empower caregiving-sector stakeholders, with a partnership-based approach. The Observatory is a hub for the production and transfer of reliable, essential and relevant knowledge aimed at raising awareness and fostering a recognition of caregiving in order to better support all stakeholders.
The Observatoire québécois de la proche aidance was established by the Act to recognize and support caregivers, passed on October 28, 2020. The Observatory is one of the structuring measures of the Quebec government’s national policy for caregivers, the Politique nationale pour les personnes proches aidantes: Reconnaître et soutenir dans le respect des volontés et des capacités d’engagement. The CIUSSS West-Central Montreal has been entrusted with developing, coordinating and providing administrative support for the Observatory.
The mission of the Observatoire québécois de la proche aidance is to provide reliable and objective information regarding caregiving through observation, monitoring, analysis and knowledge sharing.
The Observatory informs the Minister by finding and reporting on current knowledge and trends — or those to be developed — concerning evaluation approaches and indicators to measure the quality of life, health and well-being of caregivers, and to measure the impact of the policy directions, measures and actions set out in the national policy for caregivers and the government action plan.
More specifically, the Observatory’s functions are
- to collect, integrate, compile, analyze and disseminate information, in particular of a statistical nature, on caregiving;
- to monitor the evolution of caregivers’ needs as well as effective and innovative practices, measures and actions, at the national and international levels, to support caregivers;
- to facilitate the transfer of knowledge for the benefit of the various stakeholders involved in caregiving; and
- to facilitate collaborations regarding caregiving, in particular with university institutions, research centres, other observatories or the government bodies participating in research activities or activities to promote clinical excellence and the efficient use of resources in health and social services.
The Observatory targets an intersectoral, multidisciplinary and cross-cutting audience composed of caregivers, non-governmental organizations, government bodies, the scientific community, the health and social services network and the general public.
The Observatoire québécois de la proche aidance is currently in its start-up phase. Work is underway to set the stage for its future activities and achievements.
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Work in progress
- Development and launch of our official website and visual identity
- Development of a list of priority topics
- Round of meetings with Observatory stakeholders
- Creation of a portrait of Quebec caregivers (nominated partner, measure 2 of the government’s action plan)
- Co-construction of a shared terminology related to caregiving
- Creation of a reference framework for the Consulting and Expertise specialty
- Development and approval of our first strategic development plan (2022–2026)
- Four meetings with the managing committee
- Analysis of the Observatory’s role in the government’s action plan
- Mapping of caregiving stakeholders
- Interviews with 21 non-governmental organizations (NGOs) involved in caregiving
- Analysis of the needs of caregiving stakeholders in the scientific community, governmental and non-governmental sectors, and the health care and social services network
The Observatory is led by an intersectoral managing committee comprised of researchers, caregivers, ministerial representatives, non-governmental organization (NGO) members, and the Observatory’s scientific and administrative directors. Its work is supported by a dedicated team consisting of a manager, professionals and technicians.
The Observatory’s managing committee determines the Observatory’s scientific directions, general objectives and policies, as well as the annual activities it intends to carry out, and sends that information to the Minister Responsible for Seniors and Informal Caregivers. The committee consists of 13 members appointed by the Minister. Its researchers, caregivers and NGO members were appointed following a call for applications.
- PRESIDENT: Sylvie Constantineau, member of the non-governmental organization (NGO) Association québécoise des parents et amis de la personne atteinte de maladie mentale
- VICE-PRESIDENT: Marc Rochefort, member of the NGO Regroupement provincial des comités des usagers (RPCU)
- Dr. Olivier Beauchet, Scientific Director of the Observatory, Université de Montréal
- Mélanie Couture, researcher, Université de Sherbrooke
- Véronique Dubé, researcher, Université de Montréal
- Sophie Éthier, researcher, Université Laval
- Sylvie Lambert, researcher, McGill University
- Elizabeth Obregon, member of the NGO Heart & Stroke Foundation
- Cindy Starnino, Administrative Director of the Observatory, CIUSSS West-Central Montreal
- Carole Tavernier, caregiver
- An informal or family caregiver from a First Nations or Inuit community (appointment TBA)
- A representative from the Ministère de la Santé et des Services sociaux (MSSS) (appointment TBA)
- A representative from a government department that oversees support for informal and family caregivers (appointment TBA).
The scientific director sees to the scientific grounding of the Observatory’s directions and the scientific merit of its structuring projects and outputs.
- Dr. Olivier Beauchet, Full Professor, Faculty of Medicine, Université de Montréal; geriatrician and neurologist, Institut universitaire en gériatrie de Montréal (IUGM); laboratory director, Centre de recherche de l’IUGM (CRIUGM)
The administrative director oversees planning, monitoring, follow-up and assessment for the Observatory’s development and operations.
- Cindy Starnino, Director of Academic Affairs and Research Ethics, CIUSSS West-Central Montreal; Board Chair, Canadian Home Care Association (CHCA); Vice-president, Board of Directors, Pôle Universitaire en réadaptation (PUR)
- Christiane Montpetit, PhD, team leader; Executive Coordinator, Academic Affairs and Research Ethics directorat, CIUSSS West-Central Montreal
- Margaux Reiss, MSc, research professional - Monitoring and Knowledge Production
- Alexis Pearson, MSc, SW, research professional - Knowledge Mobilization and Transfer; Concerted Action
- Virginie Tuboeuf, administrative technician
- Rym Zakaria, MA, MIS, librarian
- Mathilda Abi-Antoun, BSc, DESS, support consultant, strategic development plan; consultant, front-line services, community services, Ministère de la Santé et des Services sociaux (MSSS)
- Teodora Constantinescu, MSc, MLIS, librarian